2015 Tribute to Champions of Hope Nominations Now Open!
We are excited to announce that the 2015 Community Nominated Awards for the Tribute to Champions of Hope Gala are now open! We are looking to YOU to nominate those individuals and organizations who are...
View ArticleRegister for Today’s Webinar: Leveraging a Rare Disease Center of Excellence
Still haven’t registered for today’s Global Genes webinar? There’s still time. The webinar takes place today, June 1st, at 10:00am PR/ 1:00pm ET. CLICK HERE TO REGISTER. As many patient advocates...
View Article
Image may be NSFW.
Clik here to view.
Clik here to view.
Continuity of Rare
“Somebody else probably needs it more than me.” When Todd Talarico asked his community the question, “How can we help?” most families were slow to accept financial support. However, as testimonies of...
View Article
More Pages to Explore .....
